Advances in ALS and FTD Genetics: Workshop Emphasizes Integration and Data Sharing

In conjunction with the Society for Neuroscience Annual Meeting in Washington, D.C., the ALS Assocation (ALSA), the National Institute of Neurological Disorders and Stroke, and the Association for Frontotemporal Degeneration sponsored a one-day workshop to discuss the latest research on the genetics of ALS and frontotemporal dementia (FTD). The workshop provided a unique opportunity for cross-fertilization between the ALS and FTD researchers and clinicians, and for initiating conversation surrounding data harmonization between these groups. Throughout the meeting, the common thread was the importance of data integration and sharing, and approaches to facilitate this across multiple consortia and initiatives to effectively leverage data from an already small patient population.  Although there remain many open questions, the workshop provided an impressive showcase of the explosion of discoveries in ALS and FTD genetics, and of the cutting-edge technologies that are facilitating genome-wide studies in ALS and FTD.

For ALSA’s full report on the stimulating meeting click here.

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