The Johns Hopkins University in Baltimore, Massachusetts General Hospital in Boston and Cedars-Sinai Medical Center in Los Angeles have announced the launch of the largest, collaborative, ALS personalized medicine program as part of Answer ALS. The program was initiated in response to the 2013 Team Gleason Summit (see July 2013 news), and has now secured $20M in funding. The research programs under the current initiative will include collection of longitudinal data from over 1000 ALS patients, collection of clinical data real time, generation of iPSCs from the patients with comprehensive ‘omics and clinical data, a national collaborative consortium, and finally, developing analytic tools for analysis of the large data sets. All the data will be made open access to the research community. How this program will be coordinated with similar efforts (see July 2015 news) is still undetermined.
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