Figure 3. SUMOs colocalize with familial ALS-linked SOD1 mutants in intracellular aggregates.
Image credit: Niikura, et. al. 2014 under CC BY license

ALS Non-Profit Organizations

Do you know of any additional ALS non-profit organizations? Please let us know at alsresearchforum@prize4life.org.

 


 

United States


The ALS Association

This is the largest nationwide organization supporting and advancing global ALS research, providing assistance and support for patients and families, advancing public education programs and fostering government partnerships.


ALS Emergency Therapy Foundation (ALS ETF)

The foundation was stablished to sponsor Expanded Access Programs (EAPs), which bring clinics and patients the option to try experimental medicines that are in clinical trials but not yet approved.


The ALS Finding a Cure Foundation

The focus of the foundation is funding research to find a cure for ALS, by advancing cutting-edge development tools, providing an open platform for neurological research material, understanding disease heterogeneity, and promoting early detection for those affected by ALS.


ALS Hope Foundation

The Foundation provides funding for the MDA/ALS Center of Hope, which was the first multidisciplinary ALS clinic in the United States, and for the Neuromuscular Research Laboratory at Drexel University College of Medicine. In addition, provides educational information events about ALS for patients, their families and the public, and funds ALS research  in the United States and internationally .


ALS One

The organization was founded in 2016 to bring together top leaders, researchers, doctors and caretakers in ALS within Massachusetts (USA) to find a treatment for ALS within the next few years, while also continuing to provide high-level care for those who have already been diagnosed.


ALS Therapy Alliance (ATA)

The organization facilitates ALS research projects and collaborations among a diverse group of scientists and clinicians at multiple laboratories, universities and disciplines, by raising funding and awarding research grants for ALS.


ALS Therapy Development Institute (ALS TDI)

The ALSTDI is the world’s first and largest nonprofit biotechnology company focused exclusively on ALS research, with an internal team of scientists actively working on discovery and development of treatments for ALS.


ALS Worldwide

The organization funds ALS research and provides personalized support service to ALS patients, their families and their caregivers in more than 90 countries via videoconference, email, phone, in-person visits, and online resources.


Answer ALS

This is a large scale coordinated and collaborative initiative of ALS patients, caregivers and scientists targeted at finding solutions to improves the lives of those currently living with ALS and  to advance the discovery of novel therapies and cure.


The Association for Frontotemporal Degeneration (AFTD)

The AFTD aims to improve the quality of life of FTD patients and advance development of a cure by funding research, promoting public awareness, educating healthcare professionals and providing information and support to those affected by the disease.


Brigance Brigade Foundation

The foundation’s mission is to equip, encourage, and empower people living with ALS, and to improve their quality of life providing access to needed equipment, resource guidance and support services.


Hope Loves Company

The only U.S. non-profit organization focused on the children of ALS patients. The organization provides emotional and educational support to children and young adults who have family members with ALS.


Hope Now for ALS

The organization’s mission is to expedite access to promising investigational drugs for the current generation of ALS patients, and to speed up ALS drug development by promoting improved alternative and humane designs for clinical trials.


Iron Horse Foundation

The organization is focused exclusively on fundraising for research aimed at discovering effective treatments and, ultimately, a cure for ALS.


Les Turner ALS Foundation

The foundation is a leader in funding  ALS research, patient care and education in the Chicago area and beyond, through support of a multidisciplinary research and patient center and multiple patient service and educational programs.


Kevin Turner Foundation

Working to raise awareness of traumatic brain injury (TBI)  in athletes and its possible connection to ALS, and to financially support efforts to study, treat, prevent and ultimately cure ALS.


Kick ALS!

An ALS organization composed of soccer fans, players, referees and coaches.


Muscular Dystrophy Association

Supporting patients, families, physicians, researchers and legislation to advance research and improve quality of life for patients with muscle-debilitating diseases.


The Robert Packard Center for ALS Research at Johns Hopkins

The center brings together leading ALS scientists to collaborate and access funding so that they may continue work to rapidly develop new treatments and find a cure for ALS.


Prize4Life

The organization is dedicated to accelerating the discovery of treatments and cure for ALS by using powerful incentives to attract new ideas and people to ALS.


Project ALS

Project ALS identifies and funds the most promising scientific research that will lead to the first effective treatments and a cure for ALS, bringing together the world’s best scientists and doctors and upholding the highest standards of collaboration, communication and results oriented accountability.


TargetALS Foundation

Target ALS aims to increase the number and quality of ALS drug development programs by funding, supporting and coordinating researchers from academic and biotech/pharma laboratories, providing core facilities and catalyzing direct collaborations.


Team Gleason

Helps to provide individuals with neuromuscular diseases or injuries with leading edge technology, equipment and services and raise public awareness and global conversation to promote the development of ALS solutions and cure.

Canada


ALS Canada

The national organization dedicated to supporting Canadians living with ALS, funding and fostering collaborative ALS research and advocating for better government support for patients and families.


Non-profit organizations outside the U.S. and Canada:

A database of ALS non-profit organizations, which includes a detailed and frequently-updated listing of organizations outside the U.S. and Canada, is managed by the International Alliance of ALS/MND Associations and can be found here.

 


 

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