The largest epidemiological survey of ALS prevalence undertaken in the U.S. reported 12,187 cases as of 2011. The survey, published July 25 in the supplementary edition of Morbidity and Mortality Weekly Report is the first publication from the U.S. National ALS Registry, and was led by Paul Mehta from the Agency for Toxic Substances and Disease Registry, Atlanta, Georgia. The data is derived from four nationwide administrative databases and a self-reporting web portal that were integrated into a single registry. In addition to serving as a comprehensive and systematic resource on the current state of ALS, the registry could potentially provide a large dataset for environmental risk analysis, once data use and privacy constraints are resolved.
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