U.S. National ALS Registry Reports Updated ALS Prevalence Estimates

The United States (U.S.) National ALS Registry has released an updated report of prevalence estimates for ALS in the U.S. for the years 2012-2013. The estimated prevalence rate was 4.7 per 100,000 in 2012 and 5.0 per 100,000 in 2013. The authors suggest that the slight increase compared to the first report (see Oct 2014 news) was likely due to better detection methods and increased awareness of the registry. ALS was reported to be most common among white males and people between the ages of 60 and 69. The full report was published in the Morbidity and Mortality Weekly Report Surveillance Summaries on Aug 5, 2016.

Click here to read the press release.

Primary Reference:
Mehta P, Kaye W, Bryan L, Larson T, Copeland T, Wu J, Muravov O, Horton K. Prevalence of Amyotrophic Lateral Sclerosis — United States, 2012–2013. MMWR Surveill Summ. 2016 Aug 5;65(8):1-12. [Pubmed]

disease-als registry topic-clinical
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